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February 22, 2024 3 0
Rare Diseases and AI/Digital Technologies: An Interview with Emily Lewis (Digital Transformation Project Lead)
For this episode of Karger’s The Waiting Room Podcast, we spoke with Emily Lewis about Rare Disease Day on February…
July 13, 2023 0 0
“For a Better Tomorrow”: An Interview with Nomsa Mtshali (Rare Diseases South Africa)
For this episode of Karger’s The Waiting Room Podcast, we spoke with Nomsa Mtshali, Patient Community and Rare Assist Manager…
February 9, 2023 0 0
Rare Disease Day 2023: An Interview with Lisa Sarfaty (National Organization for Rare Disorders)
For this episode of Karger’s The Waiting Room Podcast on Rare Disease Day 2023, which is held on February 28,…
November 30, 2022 0 0
Waldenström Macroglobulinemia: When It Comes Back & Research and New Treatments
This is the eleventh part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
November 23, 2022 1 0
Waldenström Macroglobulinemia: What Are Supportive Treatments?
This is the tenth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
November 16, 2022 0 0
Waldenström Macroglobulinemia: Further Types of Treatment (Part 2)
This is the ninth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
November 11, 2022 2 0
Waldenström Macroglobulinemia: Rare, But Treatable. An Interview with Dr Shirley D’Sa (Hematologist)
Waldenström macroglobulinemia (WM) is a rare blood cancer that usually progresses slowly. WM can be diagnosed by blood tests, bone…
November 9, 2022 0 0
Waldenström Macroglobulinemia: Further Types of Treatment (Part 1)
This is the eighth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
November 3, 2022 0 0
Waldenström Macroglobulinemia: Who Dares Wins. An Interview with Bob Perry (Patient / Patient Support Manager WMUK)
Waldenström macroglobulinemia (WM) is a rare blood cancer that usually progresses slowly. WM can be diagnosed by blood tests, bone…
November 2, 2022 0 0
Waldenström Macroglobulinemia: Types of Treatment – Chemotherapy
This is the seventh part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
October 26, 2022 0 0
Waldenström Macroglobulinemia: Active Monitoring, Starting Treatment, and Follow-Up
This is the sixth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
October 19, 2022 0 0
Waldenström Macroglobulinemia: Common Feelings When Diagnosed and How You Can Help Yourself
This is the fifth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
October 12, 2022 0 0
Waldenström Macroglobulinemia: Who Is in My Care Team and Which Tests Will I Need to Have?
This is the fourth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
This is the third part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
September 28, 2022 0 0
What Causes Waldenström Macroglobulinemia and How Will It Affect Me?
This is the second part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
This is the first part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
September 14, 2022 0 0
Thrombotic Thrombocytopenic Purpura (TTP): 10 Frequently Asked Questions
This is the eighth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
September 7, 2022 0 0
Thrombotic Thrombocytopenic Purpura (TTP): The UK TTP Registry
This is the seventh part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
August 31, 2022 0 0
Medications for Immune Thrombotic Thrombocytopenic Purpura (iTTP) and the Role of Clinical Trials
This is the sixth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
August 24, 2022 0 0
Immune Thrombotic Thrombocytopenic Purpura (iTTP) Treatment: Medications Suppressing the Immune System
This is the fifth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
August 17, 2022 0 0
Immune Thrombotic Thrombocytopenic Purpura (iTTP) Treatment: Plasma Exchange
This is the fourth part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
This is the third part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
August 3, 2022 0 0
Types and Symptoms of Thrombotic Thrombocytopenic Purpura (TTP)
This is the second part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
This is the first part of our series about the condition based on our patient booklet “Fast Facts for Patients:…
February 25, 2022 0 0
Rare Disease Day 2022: An Interview with Jo Balfour (Managing Director Cambridge Rare Disease Network)
For Rare Disease Awareness Month in February and Rare Disease Day on February 28 we spoke with Jo Balfour, founding…
On the occasion of both Rare Disease Awareness Month in February and Rare Disease Day on February 28 we spoke…
February 11, 2022 0 0
Rare Disease Day 2022: An Interview with Helena Baker (CEO Rare Disease Nurse Network)
On the occasion of Rare Disease Awareness Month in February as well as Rare Disease Day on February 28 we…
February 9, 2022 0 0
What Causes Pyruvate Kinase Deficiency and How Is It Diagnosed?
This is the second part of our series about the condition based on our patient booklet “Fast Facts for Patients…
This is the first part of our series about the condition based on our patient booklet “Fast Facts for Patients…
January 26, 2022 0 0
Long-Chain Fatty Acid Oxidation Disorders: Genetic Testing and Genetic Counseling
This is the third part of our mini-series about the condition based on our patient booklet “Fast Facts for Patients:…